Things I Think I Know

Well I survived my appointment with the surgeon with all of my limbs still attached.  A lot of you were asking questions so here is what I know.

  1. The treatment with the wound clinic has been ineffective (I knew that… all they did was change a bandage and lecture me most days for things out outside of my control).
  2. The test results show that the infection is taking a serious toll on my entire body.  Part of the body is fighting on, other parts have given up.  It does explain why I go to work, come home and nap until the next morning.  It also explains why I haven’t been that social this year, I am so tired all of the time.
  3. Part of that is that I am probably now a Type I diabetic.  I know this is warped but there has been so many other serious things, this doesn’t seem to be a priority for anyone. The infection drives up my blood sugars which exhausts me.  Part of the problem is that to figure out what to do with the diabetes, the infection needs to be brought back under control. 
  4. Treatment is going to be long and unsurprisingly, expensive.  The treatment the surgeon wants to try isn’t covered under healthcare in Saskatchewan.  Some basic research yesterday shows that it is in other provinces but not here.  That makes sense because it works and is faster than what we cover in Saskatchewan.   I can’t remember if I file this under lean or the New Saskatchewan.  Either way it’s ridiculous because…
  5. Everyone I deal with at the Saskatoon Health Region seems shocked and bothered that I am still working and not laying at home on my bed waiting to die.  Believe me, every single morning I was wake up and say, “I feel like death” and “I just want to stay in bed” but staying in bed causes a lot of pain while being up and about does not.  So I try to get an appointment where I can get treatment and then go to work.  I get told, “well the seniors like those early morning time slots”.  I understand that being retired is hectic but seriously?  I try to get treatment after work and am told, “We don’t offer that treatment in the evenings.”  The best is when I am scheduled for a treatment and am told when I get there, “Oh, we only do that in the morning and at a different facility.”  Or they don’t call me but insist they did.  Or I show up at appointments and am told that I cancelled it.   It is not a lot of fun dealing with CPAS and it is even harder when you are trying to keep working….
  6. I get asked all of the time if they are going to take my leg.  I don’t know yet.  Some doctors are more optimistic then others.  What we do know now is that antibiotics aren’t killing the infection.   When I am on antibiotics, the infection is at bay but as I saw this week, the infection literally moves up my leg in 24 hours after I am off it (I am back on them now).   I also am told that there will be surgeries in my near future and there will be a lot of them.
  7. So that killed the hope of hiking to Grey Owl’s Cabin in August.  I know this is stupid but that makes me incredibly sad.  You have no idea how badly I wanted to take that trip with Wendy, Mark, and Oliver.   The new treatments were going to start today.  Since we had planned to leave for Calgary at 6:00 a.m. on Thursday, those treatments are starting next week when I get back.   Wendy and I had talked about her taking the kids to Calgary herself if I needed to stay behind but I am hopped up on antibiotics that will keep me going until I get back.  Without them, I was told I would have been hospitalized in Calgary which is why I was nervous about going.  As the doctor said, I have a long and hard road ahead of me, a vacation right now is a good thing.
  8. I appreciate the advice that EVERYONE is giving me and that is that I go to the Mayo Clinic.  Umm, I have about $200,000 equity in my house.  Wendy and I have looked at re-mortgaging to do this but to go down, it would take every bit of money we have and then what happens if it doesn’t work?  I bring up the costs for just a week of treatment and people’s jaw drop.  Let me be blunt, the Mayo Clinic is for the wealthy.  Wendy and I are very middle class.  Throughout this I am realizing that people see the Mayo Clinic as their last hope.  If everything else goes bad, there is always the Mayo Clinic and “those” doctors can help you.  They may be able to do so but only at a tremendous cost that most of us can’t afford.

One thought on “Things I Think I Know”

  1. Jordon,
    do contact the Mayo Clinic in MN and see if they have a financial program that supports people in situations like yours. My sister-in-law went to the Mayo in AZ for a diagnosis of a rare condition she had. Her family was anything but wealthy, and they had no complaints about anything about that experience, including finances.

    Keeping you & family in prayer-
    Dana
    in California

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