seven eight months now, I have been battling this infection in my foot. It has gone from a part of my foot into my ankle, my skin (cellulitis) , and now my bone marrow. They have been pumping me full of antibiotics and then to keep from developing colitis, they give me probiotics. If you have ever had probiotics to go with your antibiotics, your quality of life goes way down. They are just there to minimize the worst of the what the antibiotics are going to do to you. Even my pharmacist would get freaked out at what I was being prescribed. The antibiotics make some progress but at the end of the day, the infection comes back worse when they are done.
It came back yesterday and I was stuck with the worst fever and chills cycle that I have ever experienced. Then today I topped that fever and chills cycle. My whole body aches from it. That was my last two days. I spend hours trying to get warm and then the fever goes the other ways and I have a hissy fit trying to get the covers off of me and so I can cool down. (no one throws a hissy fit like me when I am burning up and I have seven blankets on me)
As a diabetic, this is not a lot of fun because it plays havoc with my blood sugar levels. Twice in 2015 my blood sugar has gone so high that I have acne on my hands as the body is trying to figure out what to do (yeah, that was gross). As one doctor said when he looked at my blood sugar numbers, “oh fuck”. It’s so far down on the list of things they need to fix that they haven’t really made any progress in dealing with it. Of course it means that a combination of fighting this infection and the high blood sugar levels means that I am exhausted all of the time.
Of course part of the treatment is with CPAS. If one department needed to reorganized and changed as part of lean, it is them. Wendy goes to every appointment with me because she helps me with this wound on my foot. This should be straight forward but it never is. Several times I have been given appointments for things that don’t happen on that day or even that facility. Other times they call me and say, “You had an appointment”. Wendy and I are saying, “umm, no one said anything to us about this.” Then we get lectured because we show up for appointments written on an appointment card (and confirmed) but don’t show up for appointments no one tells us about.
Then when I am there, I get lectured by nurses because I haven’t had this test done or an appointment yet with a specialist. You know I tried to walk in and ask for a MRI myself and that didn’t go so well… I don’t even know what to say (which as we all know, is rare for me). I’m the one caught in the cracks of a slow system, you don’t think I want this resolved?
I wish I could say it wasn’t painful but it is. The dog licked my leg this morning (creepy, I know) and I thought I would going to pass out. The one saving grace from all of this is that it is summer and I can wear short pants (also trying to get a job at the PMO). I have had jeans on lately and the pain was horrible. It’s not like I don’t have a high tolerance for pain. I have had neuropathy for years and cope with it without pain killers but this is something else.
I wish I could say that I have faith in our Medicare system but I don’t. 8 months. Of course my mother lost her leg in a very similar way. It just took a couple of years. The weird thing is that this just seems normal here and from my personal experience and family history it is.